Hello. Welcome to my blog.
I decided to start a blog to gather information on Charcot-Marie-Tooth disease. My husband has CMT and my 2 daughters have CMT. I will be posting my husband & daughters' issues often to try and keep a running journal of their symptoms just in case it may help someone out in the future..
There isn't much research... Especially on pediatric CMT. Many doctors and even neurologists are not familiar with the disease. For that reason I am hoping to get other people afflicted with CMT to collaborate on some basic surveys and general information on their symptoms.
Feel free to leave a note...
I am interested in knowing when your or your family members' symptoms started, what symptoms you/they have, and if you have had gene testing, what type of CMT do you have.
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