9/23/2016

Temperature Regulation problems


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Amelia, cooling off with some tea.

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Ellie is overheated
























Yesterday we went to a picnic - it was hot outside!   The kids really struggle with regulating their temperature. I am guessing it is CMT related because once I read that CMT-ers are never supposed to get too cold because it exacerbates the condition.  (especially if they're sedated for surgery or some other procedure, CMT-ers should talk to their doctor & inform them that their temperature needs to be  monitored.& regulated. 

I know my kiddos & husband are very particular about being too cold- They don't like to be cold. Andrew & the kids feel like they're cold in the morning, despite the actual temperature being normal/comfortable. Maybe it has something to do with blood flow decrease during sleep-

 Heck, I would rather be cold than too hot!!!! But I don't have CMT, so I wouldn't know what you all struggle with- 

Please post your experiences with temperature!!!  I always feel like Andrew has heat radiating from him- like he's my very own space heater. Oddly enough, his basal temp is not elevated- so maybe that has something to do with nerves misfiring or something like that. 

POST YOUR COMMENTS, PLEASEEEE :D 
I'm trying to gather info on CMT, and I can't do that if no one posts!

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